Showing posts with label Video. Show all posts
Showing posts with label Video. Show all posts

Thursday, June 16, 2011

Illinois Swimmer with Williams Syndrome Competing in World Special Olympics

June 16, 2011 (ELMHURST, Ill.) (WLS) -- On Friday, a local gold medal swimmer is heading to Greece to represent the U.S. in the Special Olympics World Summer Games.

She is the only swimmer from Illinois.

After 23 years of winning medals in different events, 37-year-old Jeanne Decarlo's dream has come true.

At Elmhurst's YMCA, Jeanne practices swimming as her coach and mom Sheri encourages her to swim faster.

Swimming has always been something Jeanne does well. She was born with Williams Syndrome.

Thursday, June 9, 2011

Tuesday, February 9, 2010

Video of SVAS Corrective Surgery

This is rather graphic and not recommended for the queasy.

Thursday, January 28, 2010

Sunday, April 5, 2009

Strange Science?

I am not so sure Dr. Grody has done all his homework, nor do I really know what this show is about!

Thursday, March 5, 2009

Repair of Supravalvular Aortic Stenosis in Williams Syndrome Child (Warning: Vivid Content)

This was a little too much for me to watch but I post it here for those who have an interest in what is likely the most common Williams Syndrome surgery. SVAS is common in many WS people and can be fatal if not surgically repaired. Not all cases require surgery. Our boy has a very mild case that is monitored annually now.

WS Person, Lisa Walsh, Shows Us the Berkshire Hills Music Academy

Of particular note is the way music is used to assist education and the development of life skills.

Daniel Levitin Discusses Some Preliminary Research on Williams Syndrome

Thursday, February 5, 2009

"How's Your News," New MTV Show, First Review

Ellen Gray: MTV debuts a different kind of 'News' | Philadelphia Daily News | 02/05/2009

But it's Vest, a 20-year-old with Williams syndrome whose mother says he's "always been what we like to call 'severely unusual,' " who's the show's star.

Williams, a genetic condition associated with, among other things, outgoing personalities and good verbal skills, may have given Vest a leg up in a frothy world where one minute you're palling around with John Stamos and the next you're doing red-carpet interviews at the Grammys.

Wednesday, December 10, 2008

SpringerLink - Journal Article

SpringerLink - Journal Article:

"In conclusion, our data represent the largest collection of individuals with Williams syndrome who underwent cardiac catheterization and/or operation. The data suggest that children with Williams syndrome and bilateral outflow tract obstruction have statistically and clinically significantly higher mortality associated with catheterization or operation."

Tuesday, October 28, 2008

Dispatch Interview - How's Your News? on Vimeo

Dispatch Interview - How's Your News? on Vimeo:

"HYN reporter Jeremy Vest gets a rare interview with the nations most successful independent band, Dispatch."


Jeremy Vest is one of several reporters on the upcoming MTV show, How's Your News. Jeremy has Williams Syndrome.

Sunday, August 10, 2008

WZTV FOX 17/Nashville - Video on Williams Syndrome Music Camp at Vanderbilt

WZTV FOX 17/Nashville

An interesting account of Vanderbilt's music program seeking to help WS folks.