Showing posts with label Video. Show all posts
Showing posts with label Video. Show all posts
Saturday, July 2, 2011
Thursday, June 16, 2011
Illinois Swimmer with Williams Syndrome Competing in World Special Olympics
June 16, 2011 (ELMHURST, Ill.) (WLS) -- On Friday, a local gold medal swimmer is heading to Greece to represent the U.S. in the Special Olympics World Summer Games.
She is the only swimmer from Illinois.
After 23 years of winning medals in different events, 37-year-old Jeanne Decarlo's dream has come true.
At Elmhurst's YMCA, Jeanne practices swimming as her coach and mom Sheri encourages her to swim faster.
Swimming has always been something Jeanne does well. She was born with Williams Syndrome.
She is the only swimmer from Illinois.
After 23 years of winning medals in different events, 37-year-old Jeanne Decarlo's dream has come true.
At Elmhurst's YMCA, Jeanne practices swimming as her coach and mom Sheri encourages her to swim faster.
Swimming has always been something Jeanne does well. She was born with Williams Syndrome.
Thursday, June 9, 2011
Tuesday, February 9, 2010
Thursday, January 28, 2010
Williams Syndrome: It's Not a Fairy Tale : NPR
Williams Syndrome: It's Not a Fairy Tale : NPR
Follow the link for the full NPR interview which includes Jeremy Vest.
Follow the link for the full NPR interview which includes Jeremy Vest.
Sunday, May 3, 2009
Sunday, April 5, 2009
Strange Science?
I am not so sure Dr. Grody has done all his homework, nor do I really know what this show is about!
Friday, March 6, 2009
NYT: Profile of a young woman with Williams Syndrome
Nineteen year old, Nicki Hornbaker, discusses her fun life with Williams Syndrome.
Thursday, March 5, 2009
Repair of Supravalvular Aortic Stenosis in Williams Syndrome Child (Warning: Vivid Content)
This was a little too much for me to watch but I post it here for those who have an interest in what is likely the most common Williams Syndrome surgery. SVAS is common in many WS people and can be fatal if not surgically repaired. Not all cases require surgery. Our boy has a very mild case that is monitored annually now.
WS Person, Lisa Walsh, Shows Us the Berkshire Hills Music Academy
Of particular note is the way music is used to assist education and the development of life skills.
Thursday, February 5, 2009
"How's Your News," New MTV Show, First Review
Ellen Gray: MTV debuts a different kind of 'News' | Philadelphia Daily News | 02/05/2009
But it's Vest, a 20-year-old with Williams syndrome whose mother says he's "always been what we like to call 'severely unusual,' " who's the show's star.
Williams, a genetic condition associated with, among other things, outgoing personalities and good verbal skills, may have given Vest a leg up in a frothy world where one minute you're palling around with John Stamos and the next you're doing red-carpet interviews at the Grammys.
Wednesday, December 10, 2008
SpringerLink - Journal Article
SpringerLink - Journal Article:
"In conclusion, our data represent the largest collection of individuals with Williams syndrome who underwent cardiac catheterization and/or operation. The data suggest that children with Williams syndrome and bilateral outflow tract obstruction have statistically and clinically significantly higher mortality associated with catheterization or operation."
"In conclusion, our data represent the largest collection of individuals with Williams syndrome who underwent cardiac catheterization and/or operation. The data suggest that children with Williams syndrome and bilateral outflow tract obstruction have statistically and clinically significantly higher mortality associated with catheterization or operation."
Friday, November 7, 2008
YouTube - Chris Young at Vanderbilt Williams Syndrome Camp
YouTube - Chris Young at Vanderbilt Williams Syndrome Camp
Very nice of Chris to perform live for the gang!
Very nice of Chris to perform live for the gang!
Tuesday, October 28, 2008
Dispatch Interview - How's Your News? on Vimeo
Dispatch Interview - How's Your News? on Vimeo:
Jeremy Vest is one of several reporters on the upcoming MTV show, How's Your News. Jeremy has Williams Syndrome.
"HYN reporter Jeremy Vest gets a rare interview with the nations most successful independent band, Dispatch."
Jeremy Vest is one of several reporters on the upcoming MTV show, How's Your News. Jeremy has Williams Syndrome.
Sunday, August 10, 2008
Monday, June 16, 2008
Sunday, June 15, 2008
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