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Resources and updates from the Web on Williams Syndrome
Williams Syndrome
Identified more than 40 years ago, Williams syndrome occurs in an estimated one in 20,000 births worldwide. It arises from a faulty recombination event during the development of sperm or egg cells. As a result, almost invariably the same set of about 20 genes surrounding the gene for elastin is deleted from one copy of chromosome seven, catapulting the carrier of the deletion into a world where people make much more sense than objects do. Despite a myriad of health problems and a generally low IQ, people with Williams syndrome are loquacious, sociable, and very empathetic.
Why This Blog?
I am a Dad to a great little WS person and love doing all I can to understand his world and love him better. Since information on WS is fairly rare, I thought I would share whatever I found of interest. Plus, if you know my kid, here is a great way for you to understand him better!
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- Books on Williams Syndrome (5)
- Diagnosis (3)
- Fundraising (14)
- Human Interest (74)
- Medical Care (38)
- Music (13)
- Occupation (3)
- Parental Experience (10)
- Research (6)
- Resources (17)
- Understanding WS (54)
- Video (18)
Posts
Archive
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2011
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May
(8)
- Salk researcher gets $5.5 million grant to study W...
- Battling Williams syndrome - FOX23 News
- President Nominates Former NAB Exec To Intellectua...
- iPads help kids with disabilities to learn
- Davison event raises awareness of rare genetic dis...
- New Jersey is running for awareness
- Berkshire Hills Music Academy in South Hadley uses...
- Photo Gallery of Williams Syndrome Folks Meeting
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May
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My personal blog...
Did We Miss Something?
Got something you think should be posted at WSWW? Send us an email with a link at "the[dot]kerux[at]gmail[dot]com"
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